- < Polymyalgia Rheumatica (PMR)
Posted by alan bruce @alanbruce, Dec 29, 2018
I was at 2mg for 6 weeks of prednisone and decided go down to 1 1/2 and after 2 weeks I started to have pain in my shoulders. Will 1/2 a mg make a that sort of difference. I have been on prednisone for 18 months and have gone up and down before... Any recommendation on what to increase the predisone to.
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hopeinal | @hopeinal | 1 day ago
In reply to @dadcue "I was never sold the idea that I would be "pain free." I was told the..." + (show)
@dadcue
I was never sold the idea that I would be "pain free." I was told the pain would be managed with prednisone and the pain would be more tolerable. Yes ... the pain was more tolerable when I took enough prednisone but never was I pain free during the more 12 years I took predisone.
I was able to taper off prednisone. My steroid withdrawal symptoms were rather painful. I had to keep reminding myself that PMR was in remission. After being off Prednisone for almost 3 years ... I still have some pain but the symptoms aren't anything like the onset of PMR.
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I was totally pain free within 3 hours of my first 10 mg dose of pred and stayed that way until i tapered down to 7.
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spmgka | @spmgka | 1 day ago
In reply to @ekgilpin1 "My rheumatologist told me the opposite. She said if I’m still experiencing pain, PMR is still..." + (show)
@ekgilpin1
My rheumatologist told me the opposite. She said if I’m still experiencing pain, PMR is still present. I don’t know who to believe anymore.
I have tapered down on Prednisone to 3.5 mg. I found that tapering by 1/4 mg at a time and staying on it for two weeks works best for me. I do have some minimal pain, mostly in my arms. But it has not increased.
I plan on having my adrenal glands tested when I get down to 3 mg. This has been a two-year journey for me.
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@ekgilpin1 The blood tests will confirm it for you.
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ekgilpin1 | @ekgilpin1 | 1 day ago
In reply to @spmgka "@ekgilpin1 The blood tests will confirm it for you." + (show)
@spmgka
@ekgilpin1 The blood tests will confirm it for you.
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You mean the inflammation markers should be in normal range?
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spmgka | @spmgka | 1 day ago
In reply to @ekgilpin1 "You mean the inflammation markers should be in normal range?" + (show)
@ekgilpin1
You mean the inflammation markers should be in normal range?
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Yes, or significantly reduced.
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abbeyc | @abbeyc | 8 hours ago
I have weaned down to 1 mg 3 times and each time I get pain in my shoulders so I would up the dose again.
I have been reading a lot of comments from others about pain in shoulders while weaning off steroids . I find this to be very mysterious.
I switched to a new Rheumatologist who believes I no longer have PMR and that I probably have not had it for the past 1-2 years and I should get off steroids. I’m down to 2.5 mg and will quickly get off even with mild shoulder pain and hope it resolves itself or I will just live with it. I would love to someday know what the shoulder and upper arm pain is from.
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abbeyc | @abbeyc | 8 hours ago
Does anyone know or think Prednisone can cause (permanent?) muscle damage?
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DadCue | @dadcue | 6 hours ago
In reply to @abbeyc "Does anyone know or think Prednisone can cause (permanent?) muscle damage?" + (show)
@abbeyc
Does anyone know or think Prednisone can cause (permanent?) muscle damage?
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Corticosteroid induced myopathy happens but the damage usually isn't permanent.
https://pubmed.ncbi.nlm.nih.gov/32491663/
Minimizing dose and duration of treatment is the most important safeguard to prevent this.
"Glucocorticoids have a direct catabolic effect on muscle, decreasing protein synthesis and increasing the rate of protein catabolism leading to muscle atrophy."
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abbeyc | @abbeyc | 5 hours ago
In reply to @dadcue "Corticosteroid induced myopathy happens but the damage usually isn't permanent. https://pubmed.ncbi.nlm.nih.gov/32491663/ Minimizing dose and duration of..." + (show)
@dadcue
Corticosteroid induced myopathy happens but the damage usually isn't permanent.
https://pubmed.ncbi.nlm.nih.gov/32491663/
Minimizing dose and duration of treatment is the most important safeguard to prevent this.
"Glucocorticoids have a direct catabolic effect on muscle, decreasing protein synthesis and increasing the rate of protein catabolism leading to muscle atrophy."
https://www.physio-pedia.com/Myopathy_Steroid_Induced
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Yes thank you. I heard of myopathy from steroids. I should have been more clear with my question
But does this myopathy cause muscle pain? I have not found info that talks about pain. Just weakness.
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